About Me

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I love finding new worlds through writing and reading. I am excited by creating new flavours and tastes in the kitchen. I am fascinated by nutrition and healthy lifestyle choices. I adore my my dog, family and friends.
Showing posts with label Long term illness. Show all posts
Showing posts with label Long term illness. Show all posts

Saturday, January 17, 2015

Glimpse into finding the right foods for you

Recently, I received a comment that stated that the raw vegetable juices I drink are full of anti-nutrients and cause my autoimmune diseases, and that I eat too many sweet tasting foods. To be honest, this sent me into a bit of a spin.

Trust me, I have read about the fact green leaves might impact my thyroid condition. I have researched about fructose like there is no tomorrow. I have learned as much as I can about what foods are good and bad for autoimmune issues.

When you bounce from one recommendation to another, desperately trying to find a way to heal your body, sometimes it can feel like every element of our lifestyle is against you and how on earth are you ever going to become healthy? I have so many food intolerances that a lot of foods are taken from my diet whether they are healthy or not. I also now avoid some foods because of research which shows their contribution to autoimmune symptoms. So when someone comes along and says that the foods that remain on a short and precious list are bad for you (in their opinion), the only reaction available is a melt down, envisaging starvation and banging your head up against a brick wall!


At some point, you have to weigh up the advantages and disadvantages of each food, and decide what to eat. Most foods actually contain anti-nutrients or toxins; they contain something which could cause some type of reaction in the body which is not considered good. However, a lot of those foods are also bursting with amazing qualities which keep your body functioning. Can you imagine avoiding anti-nutrients completely?! You would starve to death. That does not seem to be conducive to good health to me! Take into consideration pre-existing conditions, determine which foods can cause issues because of these conditions and adjust your diet accordingly, and then continue to eat a healthy, wide variety of whole foods.

I recently learned of a condition called orthorexia. It is an eating disorder which focuses on eating healthy foods and avoiding unhealthy foods to an excessive level. This stunned me, because I think that it would be quite easy to find yourself on this track when you are so desperate to heal from chronic health issues, and you begin to use food as a healing method. When you read that even a mouthful of gluten can set off an autoimmune flare, and that more than 2-3 serves of even low fructose fruit a day can hinder your healing, and thousands of other facts and opinions to consider, it can be quite stifling and stressful. Throw in that your body is not doing what you want it to do, or looking the way you want it to because you are unwell, and this could be a recipe for disaster.

Our society is starting to realise how important food is in the process of healing our bodies, instead of instantly reaching for medication or surgery. In this time, there is so much information circulating that we can easily obtain. This can be highly empowering and useful, but it can also be overwhelming and debilitating. Reach out for help from nutritionists, dieticians, naturopaths and doctors if you need help to find your way. Do your best to feed your body healthy and enriching foods, and then relax. I still feel stressed about the comment made by someone who does not know me or my situation, but I know that I am doing the best I can for my body. I am constantly learning and looking for better ways to improve my health, and will continue to do so. Giving into the negative scare tactics and debate which is rife will only render your health into an even worse state. Make informed, educated decisions about your health, and know that you are doing the best you can.

Wednesday, January 7, 2015

Glimpse into fighting for the life you want to live

Having chronic illnesses is like being a tightrope walker, juggling twenty different balls, with one arm tied behind your back and a blind fold over your eyes.

 *

You are forever fighting against losing every aspect of your life which is important to you, while at the same time finding the delicate balance of where to step so as to not over do it and make yourself more unwell. Sometimes I fear that I have dropped too many things - I do not work, I can not study, I do not exercise, I barely attend social functions, I often can not do my hobbies, I have moved back in with my parents; so much of what makes me me is currently not part of my life. Sometimes I feel so shaken and distraught by the thought that I am getting older and I am missing out a crucial part of my life. I know that I have fought; every day I work towards better health. I know that I do not make excuses, I have definite goals, and I am determined to reach them. The body's weaknesses are hard to beat though, and I am on a long, slow road. Finding that happy medium, where you do not give up, where you battle against the odds to reach your goals, and where you do not push too far that you create damage; that is the real challenge of living with chronic illness.

Reassessing what you want from your life is often part of the answer. Making realistic goals will get you further. I have posters on my wall with my goals written on them. These goals are not the same as the ones I had 2, 5, or 10 years ago. Some are smaller versions of them. Some are completely new ones, born out of the rediscovery of myself through the shake up that illness is to life. Some seem huge to me now, but I know that if I can keep fighting, I can keep working towards them.

While you work towards these goals, find something that you find rewarding that is within your capabilities. Try so hard to not be the illness. You are you, and there are so many things that make you you, and only you can fight to keep them within. Every little step in the right direction, as small as it is, takes you a step closer to good health, and a step closer to getting back the life you want and deserve.
 
I am thankful for what my body still allows me to do, but there is so much that I miss out on and I want to do everything in my power to do all that I want to do with my life. Look deep into yourself and find what it is you want to fight for, and claw back to that point with every fibre of your being. We can do it.

 
 *In trying to find tight rope walking photos, I stumbled across this photo of Chinese acrobat, Aisikaier, who tight rope walked 656 feet over a ravine, blind folded. Moments before the reaching the end, he felt dizzy and fell. Amazingly, he walked away from it with barely a scratch! Everyone has to give what they are passionate about a go, no matter how crazy it may seem! 

Thursday, November 13, 2014

Glimpse into learning to live with chronic fatigue/ PosturalOrthostatic Tachycardia Syndrome/ Hashimoto's Thyroiditis

Now and again, someone stumbles across my blog who is new to dealing with chronic fatigue, or a friend of a friend points them in my direction for advice. This has made me think that it is time to do a summary post about some of what I have learned about dealing with certain issues so far on my journey.

Sunday, October 5, 2014

Glimpse into week seven of the Autoimmune Protocol

I feel quite happy with my progress on the Autoimmune Protocol. If nothing else, I have decided that I am much better off not sneaking in the foods I know that am intolerant to (who knew?!). I have decided that I am going to continue to avoid grains, gluten, nightshades, sugar, and the foods I am intolerant to (dairy, wheat, peanuts, eggs and FODMAPs) indefinitely.

Glimpse into week six of the Autoimmune Protocol

Week six! This is flying by. I would say my progress this week is similar to last week's. I have had the added nuisance of regular nausea though, which I am frustrated and confused by!

Does anyone else have issues with meat, and different ways of cooking meat? I have had problems with slowed cooked and stewed meats for some time. Even the smell of them cooking makes me feel unwell. This week, as strange as it sounds, I think meat that has a stringy, fibrous texture is what might be causing the problem. I would love to hear anyone else's ideas about digestive issues with meat, why it occurs, and ways to overcome it.

Saturday, September 20, 2014

Glimpse into week five of the Autoimmune Protocol, and starting Midodrine

This week began with a visit to a friend's place which involved food. I cut up a pile of carrots, celery, and cucumber, and created a pesto. It was simple, but I was able to cater for myself as well as bring something that other people would be interested in eating (though, placed on a table which was full of amazing looking (and smelling!) cakes and sausage rolls, I'd have not blamed a soul for not touching the rabbit food!!!)

Sunday, August 24, 2014

Glimpse into beginning the Autoimmune Protocol

I have learnt so much in the past couple of years, which is an opportunity I would have missed had I not become unwell. Having chronic illnesses which have caused me to stop work, and for my entire social, personal and active life to change to learn these lessons is far from ideal, but I am grateful (otherwise, what is the point of this struggle?!).
I am constantly reading (when the brain fog allows it, that is!) about my conditions and ways to improve my health. My background as a nurse has helped me here, and a passion for nutrition and wellness has been awakened.
Lately, I have been researching the Autoimmune Protocol (or the Paleo Approach). This is a diet which restricts certain foods so as to decrease inflammation in the gut, soothing and healing it, and subsequently, potentially, improving (or preventing) the autoimmune conditions that are often a result of the gut inflammation. When I was first diagnosed with autoimmune disease, I read about foods which were good and bad for thyroid conditions, and basically put it into the too hard basket (aside from avoiding gluten). I was already eating a restricted diet due to food intolerances, and I was quite unwell, so the idea of making it more strict seemed ludicrous! However, there appears to have been a lot more written about the diet since then and there are so many resources that demonstrate it is a feasible and beneficial diet (I purchased "The Autoimmune Paleo Cookbook" and "The Paleo Approach; Reverse Autoimmune Disease and Heal Your Body" - both of which have been extremely useful). Also, last month I had my antibody levels tested (these show that I have Hashimoto's Thyroiditis), and they have increased from 2400 last year, to 3800! They are meant to be under 60. This has really motivated me to find something that may improve this, and as my doctors says I do not require thyroid medication, food seems to be a smart place to focus.

Tuesday, May 13, 2014

A glimpse into changing our focus

Something which I have come to realise is that the small things in life, which we so often overlook, can actually be defining and motivating moments which can change our course, our perspective, our appreciation and our happiness. When the universe forces us to stop, due to something like a chronic illness, it is often then when we realise the beauty and wisdom in such small moments.
Today, I was fascinated by the stunning shape and texture and colours made by a tree's thick bark, slowly bending and shedding itself from the trunk. I would never have contemplated such a simple thing prior to my illness, but now that my body has slowed me down, I see things differently. 

This has made me think, why do we wait until something forces us to see the little things? 

I have decided to start a new blog series. I want to help people see the good in each day. 
If you are rushing about, too busy with life, this is pertinent for you. Start to look at the small things, and make the most of the opportunity to do so without being forced to stop. 
If you have already been slowed down, this is also for you. I have really noticed how ackowledging the small things helps me get through each day, when the big things can seem so overwhelming. Instead of focusing on what you can no longer do, or the financial worries you might have, or the people you don't see anymore, look at the amazing things that blossom within the tiny moments of each day.

As often as possible, I will put up on the blog a short post consisting of the following list:

~ See the good (small things to be grateful for)
~ Feel the happy (small things to be happy about)
~ Brighten your mind (small things to be fascinated by)
~ Find the moment (small things to plan to see/do/feel)

I am calling this series "Magnifying Moments".

I hope you join me on this journey of making time to put more focus on the little things, and gaining the understanding of the enormity of doing so. I would love to hear about what you see along your journey too, and how these thoughts and moments enhance you and your life.




Friday, May 2, 2014

Glimpse into a day in the life of a sufferer of Myalgic Encephalomyeltis/Chronic Fatigue Syndrome

As part of raising awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) leading up to the International Awareness Day on May 12th, I decided that I would document an average day for me, a sufferer of ME/CFS.
 
Wednesday April 30th, 2014:

11am: I wake up just after 11am, feeling groggy and tired. I lie there for about half an hour, before picking up my phone and looking at messages and social media. I take my blood pressure and heart rate to check how they are due to starting a new medication two weeks ago. The usual spot to the left of my belly button is aching right through to the other side of my body; a sign my food intolerances have been aggravated.

12pm: I drag myself out of bed so that I can get some food to take with my morning medications (which I am late to take due to the unavoidable sleep in). I collect my tablets and food (my Mum makes up my breakfast at the moment, which is an amazing help), and climb back into bed. Feeling tired and dizzy, I eat my breakfast (lunch?!) and, although my bowl of quinoa and chia with raspberries and strawberries is delicious, I quickly move the pillows down again to a position close enough to lying down as possible while trying to allow a position of "I am letting my food go down." I turn my audiobook on (yep, you caught me - I have started our book club book, "Gone Girl" a day early :-P), and snuggle under the doona to get warm, feeling my eye lids fight the knowledge that it is the afternoon. My heart is thumping after the exertion of eating, and my legs are heavy and wobbly after standing when I put my breaky in a bowl, and got all of my medications together.

1pm: Mum subtlety asks me what time it is. Ten minutes later, she asks me whether I think I should really get up now and move about. My impending nap is clouded by motivational guilt, and I turn the audiobook off. By 1:30pm, I drag myself out of bed, pull on some comfy leggings, and migrate to the couch.

Wednesday, April 30, 2014

Glimpse into part two: things to do when your body doesn't want to play ball -Wellness Wednesday week 16

Last Wellness Wednesday, I blogged 5 ideas for things to do when you are chronically unwell, to keep yourself entertained and happy. You can read them here. This week, I bring you five more ideas!

1. Do a chore. I know, I know, I said that these ideas would entertain you and make you happy! Finding a chore that you can handle without making yourself more unwell however, can be so effective in the healing process. It is physiotherapy, and it helps you feel like you contribute something to the world, no matter how small. It also helps you work towards the elusive and tantalising dream of a Spoonie...that thing they call independence! (Don't know what a Spoonie is? Read the post where I wrote about it here).
Something I enjoy doing when I have some energy is baking, or cooking a simple meal. Hidden in the joy of filling the house with delicious smells, and your belly with healthy treats, are exercises which strengthen your arms, walking and movement as you get the almond meal from the fridge, and squats to empower your legs as you reach for bowls in the cupboards. Find something that you can enjoy which won't set you back for days. Walk with your helper/friend/family member around the shops as they do the groceries. Wipe the kitchen bench. Fold the washing. Load the dishwasher. It might seem like a little thing compared to what you used to do, but from little acorns...


Wednesday, April 23, 2014

Glimpse into things to do when your body doesn't want to play ball -Wellness Wednesday week 15

A common question I see popping up in forums and groups for people with chronic health issues is "how do I stop myself from going crazy with boredom/frustration/loneliness/anger/sadness?" It can be a problematic issue, and it is a catch 22 situation. You feel so unwell because your body is sick, so you inevitably miss out on more and more in terms of socialisation, work, chores, physical exercise and activities; normal life! So then in resting your body and trying to heal, you find yourself feeling lonely and frustrated, which then makes you feel worse. It is a vicious circle. The best thing for your body while it heals is to find things to do that can keep your soul happy, your mind active and your body moving within its limits. These are some of the things that I have found to be effective. I will post 5 today, and another 5 on another Wellness Wednesday. 

1. Find a hobby: Take this opportunity to turn a bad situation into a good one; do something that you haven't had chance to do before. For me, I have dived into paper craft, scrapbooking, memory keeping and photography in a big way, and I am loving it! Find something that is within your body's current physical capability (for example, scrapbooking is great because you can sit in a comfy chair or even lie down with a tray table across your lap and relax, but still be doing something with your hands and mind). I love to listen to audiobooks because I am an avid reader, but find physically reading too taxing most of the time (Audible is an awesome site for affordable, online audiobooks). Try painting, or decorate a mug or a pillow, do some cross stitch, play chess with a friend, play a gentle instrument, learn the rules and strategies of a sport on tv such as cricket or the formula 1, try your hand at writing, sewing, or gentle gardening. 

Creating a crafty mess while scrapbooking....


















Wednesday, April 9, 2014

Glimpse into body image with chronic conditions (i.e. wanting to look and feel great!) Wellness Wednesday week 15

Something that I do not see written about much in relation to Chronic Fatigue Syndrome (CFS), Postural Orthostatic Tachycardia Syndrome (POTS) and other chronic illnesses, is body image and getting fit. Obviously, it is not the highest priority when you are struggling to gain a good quality of life, so it doesn't feature so much in articles or forums. However, I feel that it is an important factor to consider. When you lose control over your body and it is not functioning well, it adds to the frustration and sadness when you realise that you can not even work towards making it do and look like you want.

Tuesday, March 4, 2014

Glimpse into another diagnosis - POTS & RBBB

My health journey has taken another turn in the past fortnight. Mid February, I visited a cardiologist, after having had a tilt table test performed in December, and discovered that I have Postural Orthostatic Tachycardia Syndrome (POTS). This explains a great deal, such as the light headedness, dizziness, palpitations, low blood pressure, nausea, brain fog and fatigue. It is mind blowing for me that this hasn't been discovered sooner. I have had the symptoms since I was a child, and although I've had other diagnosis made such as Chronic Fatigue Syndrome, and although it is a bit like the chicken or the egg in terms of determining which symptom or condition came first, it is amazing that it has taken til I'm nearly 30 to make the diagnosis. There have been several chances for this diagnosis to be made in the past, and it took me requesting the tilt table test (the diagnostic test used to diagnose issues related to blood pressure and heart rate) to actually get it done. I really can't stress enough how important it is to be your own advocate in the health care setting.

Thursday, February 20, 2014

Glimpse into Wellness Wednesday; week 8 2014 - belly breaths

This week has been one of information overload for me after a visit to a cardiologist brought a new diagnosis. I am working on staying calm, processing the information, and looking at it with a positive view, and as a step towards better health with new treatment.
Therefore, I feel this week's Wellness Wednesday should focus on deep diaphragmatic/belly breaths. This type of breathing can reduce stress and pain, and improve crucial body processes such as your immunity and blood pressure. Once you have read this, take your focus away from the bright computer screen, away from the chores that need doing, and take your mind away from all that worries you.

Close your eyes, take a deep, slow breath through your nose, and focus on the rise of your abdomen/belly rather than your chest. Exhale slowly and feel the benefits of the increased amount of oxygen in your body. Be thankful for being alive, for being here to enjoy the good times, and for the good people in your life. Don't let the big problems overwhelm you.

Every time you feel like the worry is setting in, take 5 to 10 deep breaths.



Sunday, February 16, 2014

Glimpse into Motivation Monday - week 8 2014

This week's Motivation Monday...
 

This is especially apparent in chronic illness, due to the ongoing unwell times and loneliness, and then the stressful visits to doctors, endless tests, worry about employment and your lack of independence, and how you will get your life back on track, the loss of friends, and life plans and loved activities. Sometimes it can all feel unbearable. 
What I try to tell myself when I feel like this is that this is just how life goes. This is what it is all about, and by getting through the tough times, we get to the good times. Some things are hard, and they hurt, and they are unfair, but if we can not change them we should not focus on them. It is the hard things that we do have control over which we should put our energy into. Let go of the unchangeable, accept it, and adjust to it, and work on what you can change.

And sometimes, when everything happens at once, it will be the good things. 
 
Just take each ball as it comes. Accept the strikes, and hit the others out of the ball park. We can do it.